Update on Jared

Wanted to give everyone a quick update

Yesterday we had some very exciting news; Jared was able to push with
his left leg. He still has no feeling below his chest, but this is the
first real movement he has had in his lower body. Essentially he can
do a leg press, with maybe a pound or so of pressure. I spoke with his
Dr. and he was very excited about this news. He believes this is the
sign we have been waiting for.

We are truly praying for a Christmas miracle

I hoped to have more news soon. The last 3 or 4 weeks have been kinda tough
because he has had so little progress so we are praying this movement
will be the catalyst to a rush of improvement.

Thank you all for everything you have done for our family, this process
certainly has not been easy, however so many people have done so much
for us and for that we are truly thankful.

Update on Jared

Jared is doing fine. Outwardly we haven't necessarily seen a ton of progress, however the Drs are telling us his lab work looks much better. We are praying hard that this will be the catalyst to improved movement. I truly believe we are going to see huge progress in the next day or two. This has been a long hard situation and Jared is really getting tired of being here, so let's all pray for a small step forward.

More as I have info to share

Bill

Jared's new room

So many people have asked about the room for Jared, I am just floored by all of you.  It is truly amazing how many great people there are in this community.  We are so blessed and God continues to be so good to us. 

We had several members of our Church most of whom are the building business come to the house and I am thrilled to say the room is nearly complete.  Thanks  to all of you it is truly incredible what you have done. 

Randy, JV,  Bobby, Mike, Blaine, Brad and crew, Wayne I am speechless!!!!!

Jared was featured in the News Journal

http://www.news-journalonline.com/news/local/west-volusia/2010/12/06/childhood-friends-share-rare-disease.html

Phi Sig fundraiser for Jared

What an amazing group of men.  The Stetson Community is simply incredible, we had over 70 people in attendance.  Tommy, Mike, Brandon and all the others I haven't mentioned you guys are the best thank you so much.    I must also not forget the Sunshine Lanes folks Pete, Joe and of course Amanda.  Just an amazing time and our family really had fun it was great being around all of you, so thank you all!  I am just blown away by this community.

A couple new videos

Jared is definitely getting stronger

The world goes nuts dogs and cats caught sleeping together Ok so even I am feeling better and get off my bed

 

Update on Jared's Progress

I want to start this week by saying God is good and even in these difficult times I see him around me and my family.  Vicky and I made it to church today and it really does help us get thru the week.  On the Sundays we miss I fell different all week. 

Jared had a good week.  He continues to get stronger in his upper body and he had what they call trace move movement in his legs.  The best way to describe this is it might take 50 nerves to move your legs and he has maybe 2 working right now.  This is probably not the most accurate medical explanation, but at least it gives you an idea of what he is dealing with.  He has gone from not being able to lift a small cup of water to lifting a few pounds.

He can roll himself around in the wheelchair but it is still very tiring and he can only go in short bursts. 

Vicky and I have to say thank you to all of you who have volunteered to help with the building of Jared's room.  It is amazing the amount of people willing to take the time and come help.  Several contractors from our church have volunteered to do all the work and I will be trying to purchase everything this week so they can get started.  Just another example of the amazing outpouring of love we have witnessed since Jared went in the hospital

People have asked me about what we are eating and thanks to Rich (chicken parm last Sunday) and David (steak and chicken Saturday that we are about to eat again now) we have had incredible meals and leftovers.  David and Kathy have been so great not sure what we would do without them.  Of course not to be forgotten is Shelia Collins who always remembers Jared with food :) and Jen and Lucy with great bakery items. 

Jared had a special visit from Dr. Libby this week.  He was so impressed that she came and still hasn't stop telling people about it. 

PS Rich we have more little Pepsi for you.