Hello everyone
A quick update on Jared; he is progressing although painfully slow. As you have seen in the videos on the blog, he is able to use his arm to move the wheelchair and now can eat by himself. He still does not have feeling below his chest so this is now our greatest prayer. We really need the paralysis to continue to move down his body.
I wanted to start this post by saying thank you to all of you for the enormous outpouring of love, help, thoughts and prayers. I heard a word from the Old Testament “mish-pah-KHAH” I looked up the meaning and it is roughly translated as extended family, clan or those considered family who are not in your immediate family but can be considered essential to you. Well after these 6 weeks the people I hold as mish-pah-KHAH has increased in number dramatically. It is impossible to express exactly how much it helps when we receive an email, card, phone call or visit. We truly cherish the relationship we have with each of you.
Ok now for the fun stuff. Many of you have asked how you can help and we have a huge request. Let me first say I don’t want anyone to feel bad if you cannot help, so please do not feel like you are being pressured into volunteering for something you do not want to do. Everyone has been so great to us during this and I fully understand if you do not have the time or energy to assist.
As many of you know the bedrooms in our house are on the second floor and this will pose a huge problem when Jared comes home as it is almost a forgone conclusion that he will be in a wheel chair when he is released for rehab. My solution to this is to build a room in our garage; again as many of you know I am pretty good with a ball, bat, hoop, net, etc, however I have never been a star when it comes to saws and hammers. So what I need is help with designing the room, buying the necessary materials, maybe picking up of the materials (I have a truck), and then most important building the room.
I am not sure exactly how long Jared will be in the rehab facility. However, I am worried that when the decision is made to have him leave we will have a very short lead time and so I want to get started on the room in the next couple of weeks. I guess email me or give me call if you think you can help.
Oh and if anyone knows of ways to get the materials cheaper than simply going to Lowes please let me know, as you can imagine we are not exactly rolling in the dough right now, so anything we can save will be great.
Thanks so much
Bill and Vicky
Hi Bill. I found this link online from the news- journal. I'm sorry your family is going through this challenge. I haven't had the pleasure of meeting your son yet, but I'm sure if he's like you he's a great guy. I have a friend who runs the Flagler County habitat for humanity store. The last time I was in there he had quite a lot of building materials. I don't have the number handy now. His name is Paul at the habitat store in Bunnell. If you give him a call he may be able to let you know what type of stuff he has. My number is 8047428. Please call if I can help you guys with anything. Mike Tuma
ReplyDeleteThis is so weird...I rarely look at the News Journal anymore since I had to come to Dallas for medical treatment but I was somehow driven to today. As I began to read the story I thought to myself..."Wouldn't it be WEIRD if this rare illness was Guillain-Barre?"...And SURE ENOUGH! OMGosh...what's going on there? Last year I went from Florida Hospital, to Halifax, and ultimately to Orlando Regional Medical Center in Novemeber...before I was diagnosed with Guillian-Barre Syndrome!...GT
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